Every affected patient must be informed about the report to the cancer registry. The reporting institution is under the obligation and responsibility to provide the information before the first data transmission. To support the institutions, the Bremen Cancer Registry provides an information brochure for patients, who may thus read about details of the data transmission process at a later time. You can also request the printed brochure by contacting Ms. Sonja Vogl by phone 0421-21856998 or by e-mail to s.vogl(at)kvhb.de.

(Note: The information brochure is currently being revised in view of the amendment to the law. The new version will be made available to you here as soon as possible.)

The following aspects should be considered when informing patients

• Information about the report and its purpose
• Information about the right to object (objection) to processing and use of the data
• Information about the report without direct contact to the patients (e.g. pathology)
  

In case of the risk of deterioration of health by informing an affected person about the cancer diagnosis, the information may be omitted. The reasons for this omission must be documented. As soon as the person is informed about the cancer, he or she must also be informed about the report to the cancer registry.

Procedure in the event of an objection

If a patient objects to the report to the cancer registry, the report still has to be transmitted. The information about the objection is then entered in the field “Aufklärung des Patienten” ([information of the patient] in the recording module) or “Meldebegründung” ([reason for reporting] on the interface) with the entry “Objection”. The identity data in all reports of this person will be deleted once the billing process has been completed. However, the medical data are retained but can only be used for analyses to a limited extent.